Saturday, May 30, 2009

Hope Floats



The verdict is no radiation at this time. Dr. Chen says it can wait for now because it's too risky in the area where radiation would be given. The heart and the lung could be compromised and it would not be good for Marco.

Dr. Chen spoke with Dr. Chow (chemo doctor) who is also the prime investigator at City of Hope for the Phase III Trial of AP23573. He also agreed not to do the radiation now. He wanted to give Marco a chance to start on the AP23573 because tests showed that the chemotherapy has worked to kill the live cancer cells in the lung tumor.

We are crossing our fingers that this Phase III pill will be the real thing and not a "sugar pill" which in any case it wouldn't matter in the long run because a lot patients with sarcoma's will benefit from all the information gathered.

These last couple of days has been somewhat of a stress since Marco had a lot of questions and concerns in regards to the Phase III Trial. After reading and re-reading all of the paper work that was given he decided to go ahead and do it. This, Monday June 1st he has an appointment to meet with Dr. Chow to see what is going to be needed before they start or if they still need to do some exams to verify that he is still a candidate for the Phase III Trial.

Marco is still having some pain but has been up and around...he continues to test himself at times but now he knows what his limits are. (It's about time!)

Well the kids are now on vacation...for a moment, Marco thought that he might have to do some radiation and all he thought was oh no that meant that the kids summer would be spoiled again and that he and the kids (and I) would be at COH. So he was relieved when Dr. Chen said no more radiation.

Like Marco says, you try not to say that you get use to it (being at COH)...but you do. City of Hope has become our second home away from home. Under the circumstances we wouldn't have it any other way.

I would like to thank everyone who have been calling Marco lately, it has been a great treat to see Marco talking and laughing with you guys.

I will let you know what happens in the next appointment...

The Wife

11 comments:

Anonymous said...

Great news! I'm happy to hear that Marcos is doing better "One Day at a Time", hang-in there buddy. Soon you will be saying, CHHAAAOOOO... I beat this sucker! My thoughts and prays are with you and your family. I wish you Good Luck, "WARRIOR" with the Phase III trial.

The Man, the Myth, the Legend "Bets" ha,ha,ha (brings back memories of the good times we had)

Anonymous said...

We are happy to hear that Marcos is doing well. Good luck with the phase III trial and you will be okay..This blog is great it keeps us posted of Marcos status. Marcos and your family are in our prayers.

Wishes from Robert, Samantha and Myra Sanchez

DLP said...

Dad, you will never spoil Matthew or my summer as long as we are all adventuring together that's all that matters.
p.s:
we'll be right there with you at your phase III trial.

The Wife said...

Well,well if it ain't the Disturbbers. I can't believe I am saying this but I am glad to see that you guys are writting and chatting with Marco.

I hope that you guys read the blog to catch up to where we are now. We have been through a lot these couple of years and now as you can see from the blog we are hoping that this medication that Marco will be taking will help him fight his fight with sarcoma cancer.

This medication has been working for some patients and not on others. There are a lot of patients out there that could benefit from this medication and are hopes is that Marco will too.

Marco has gone through so much it's a cherished moment to see him take a call from a childhood friend. It's priceless to see that he is enjoying his conversation and at least for those minutes it seems as though he is not in so much pain. I say it seems because you don't see the pain in his face.
Hope we continue to here from all of you.

Patty said...

One Day at a Time said...
Wow, it's been great to see so many different folks commenting on the blog. I am behind a couple of posts so I wanted to catch up. First, I am glad to see that Marcus is slowly recovering. Saw the battle scar and Marcus IS truly a warrior. Glad to see that his hair is starting to grow back. I along with everyone else also hope that this phase III trial will help him get rid of this cancer. We always want Marcus to get better and we are glad that the kids will be there to keep him busy. We appreciate that you keep us posted, especially us flakys that don't call as often as we should. Will do:) Luv u all.

Anonymous said...

Leezy120 said:
It is really lifting to hear from everyone. We are hoping for the best with the Phase III Trial. Hope your scar is healing and pain is getting under control. I'm sure it's been a week with so much information and research to do with the Phase III Trial. Our hopes and prayers are with you everyday. We love you so much!

Anonymous said...

Hello everyone, I read this blog everyday. Marie has done a great job keeping this blog updated (with her busy schedule). V & R you guys deserve a standing ovation for putting together the fundraiser event and of course along with all others that helped. M & M are truly blessed with two wonderful children and such a great family.

Marcos you look good with or without hair. Actually, you both look good! We all have faith that the phase III trial WILL work for you.

Wish you the Best!

Laura V.

Surviving 3 Under 5 said...

Well Well Well
Under the Circumstances, Damn it is good to hear the Disturbers!!

Who would have ever thought those words would be spoken...Ha!

I am glad to hear that you boys have reconnected with Marcs. There is a lot going on with this family. They are always on the go. City of Hope Appt, Maries's doctor's appt, dropping the kids @ school, ,Chemo, radiation, pick line cleanings, leg checks, lung checks, MRI, Pain Management Appt, rushing through traffic on the 210 fwy back on time to pick up Machito. All in time to be Carpool Parents for Gianina's & her friends.

They are doing it all. All without skipping a beat. Sometimes I know they get home and pass out from exhaustion.

So in the insanity of making sure they keep track of their appt, the kids and life... sometimes it is hard to keep everyone in the loop. This blog does that. It allows us to keep up with the family and the new events. It allows as a peek into what is going on. So Welcome.

When you have a moment check out the blog, and by all means call, call, call them. They might be in the middle of traffic but, a call from one of you boys would surely make thier day.
Yeah I said it! Make thier day Marie's tooo. HAHA!!

Surviving 3 Under 5 said...

Well Well Well
Under the Circumstances, Damn it is good to hear the Disturbers!!

Who would have ever thought those words would be spoken...Ha!

I am glad to hear that you boys have reconnected with Marcs. There is a lot going on with this family. They are always on the go. City of Hope Appt, Maries's doctor's appt, dropping the kids @ school, ,Chemo, radiation, pick line cleanings, leg checks, lung checks, MRI, Pain Management Appt, rushing through traffic on the 210 fwy back on time to pick up Machito. All in time to be Carpool Parents for Gianina's & her friends.

They are doing it all. All without skipping a beat. Sometimes I know they get home and pass out from exhaustion.

So in the insanity of making sure they keep track of their appt, the kids and life... sometimes it is hard to keep everyone in the loop. This blog does that. It allows us to keep up with the family and the new events. It allows as a peek into what is going on. So Welcome.

When you have a moment check out the blog, and by all means call, call, call them. They might be in the middle of traffic but, a call from one of you boys would surely make thier day.
Yeah I said it! Make thier day Marie's tooo. HAHA!!

Anonymous said...

in the midst of danger we fight to survive.
in the midst of fear we fight to survive.
in the midst of pain we fight to survive.
in the midst of hurt we fight to survive.
in the midst of anger we fight to survive.
in the midst of joy we fight to keep calm.
in the midst of happiness we fight to take it all in.
in the midst of love we fight to appreciate it all.
in the midst of friendship we fight to keep close.
in the midst of family we fight to make and keep memories.
in the midst of cancer YOU fight to survive.
in the midst of cancer WE fight to help you survive!

Live LIFE.
Laugh.
Love LIFE.

-e

Anonymous said...

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And according to this article, I totally agree with your opinion, but only this time! :)