Tuesday, May 26, 2009
Made of Some Tuff Stuff!!
Well it's been about 1 week and 4 days that Marco came home from the hospital since his major lung surgery. It's amazing to see Marco right now, walking around, making jokes, laughing and just being himself again. Just two weeks ago he was not looking good. He couldn't breath right, couldn't talk for a second because he would exhaust himself and getting up out of bed with a chest tube in your back was a chore.
He has been walking around and taking evening walks to try to stay active so the pneumonia doesn't come back and the lungs can get all the oxygen they can get.
He built a Hot Wheel for NuNu for his 4th birthday this past weekend...it was a chore but he did it....and he was in some pain but he did it anyway. He wants to do so many things but as he tries to do some of them he finds out pretty quick if he can do them or not.
If you were to see Marco after each surgery and even see him today you would never imagine all that he has gone through and you could never imagine to see the huge battle scars he carries on him. Those battle scars are of a true warrior. All of Marco's hair had fallen off with the four cycles of chemo he did and during his one week stay in the hospital it all started to grow back. His eye brows are really dark and the hair on his head is really light and it's so soft. We tell him we started to like the bald look on him and he just gives a smile. Speedy recovery honey!
Rally Monkey's! We are fighting back! With a new plan of attack.
Marco has made a decision to participate in the Phase III trial of the AP23573. I am so proud of him for deciding to go ahead and do the trial. This will not only help him but others as well. This medication could be the pill that will help sarcoma patients with different types of sarcomas, I hope.
We all need a cure for some form of cancer and you bet that Marco will be one of the ones who says Ok! I will do it. Even thought it may be a placebo, it is still helping in the studies being make for this pill.
Fighting back is what Marco does best. This cancer has no ideas who its messing with. Marco your a tuffy and we tell you all the time. You are made of some tuff stuff.
Today he has a chest x-ray and a post-op appointment with Dr. Grannis the surgeon who did his surgery. (He did a great job) I will post an update in this post later or make a new one. I will let you know after we come back from City of Hope.
Posted by Moshura's Sister at 5:30 PM