Tuesday, May 26, 2009

Made of Some Tuff Stuff!!

Well it's been about 1 week and 4 days that Marco came home from the hospital since his major lung surgery. It's amazing to see Marco right now, walking around, making jokes, laughing and just being himself again. Just two weeks ago he was not looking good. He couldn't breath right, couldn't talk for a second because he would exhaust himself and getting up out of bed with a chest tube in your back was a chore.

He has been walking around and taking evening walks to try to stay active so the pneumonia doesn't come back and the lungs can get all the oxygen they can get.

He built a Hot Wheel for NuNu for his 4th birthday this past weekend...it was a chore but he did it....and he was in some pain but he did it anyway. He wants to do so many things but as he tries to do some of them he finds out pretty quick if he can do them or not.

If you were to see Marco after each surgery and even see him today you would never imagine all that he has gone through and you could never imagine to see the huge battle scars he carries on him. Those battle scars are of a true warrior. All of Marco's hair had fallen off with the four cycles of chemo he did and during his one week stay in the hospital it all started to grow back. His eye brows are really dark and the hair on his head is really light and it's so soft. We tell him we started to like the bald look on him and he just gives a smile. Speedy recovery honey!

Rally Monkey's! We are fighting back! With a new plan of attack.

Marco has made a decision to participate in the Phase III trial of the AP23573. I am so proud of him for deciding to go ahead and do the trial. This will not only help him but others as well. This medication could be the pill that will help sarcoma patients with different types of sarcomas, I hope.

We all need a cure for some form of cancer and you bet that Marco will be one of the ones who says Ok! I will do it. Even thought it may be a placebo, it is still helping in the studies being make for this pill.

Fighting back is what Marco does best. This cancer has no ideas who its messing with. Marco your a tuffy and we tell you all the time. You are made of some tuff stuff.

Today he has a chest x-ray and a post-op appointment with Dr. Grannis the surgeon who did his surgery. (He did a great job) I will post an update in this post later or make a new one. I will let you know after we come back from City of Hope.


Anonymous said...

We knew you could do it. Keep feeling better and taking those walks. Our thoughts and prayers continue to be with you. Nice Picture. Big Looch

Anonymous said...

wait, wait, wait----- what are the side-effects??? i dont know if i can take crazyman,super-organized man, bored man, lazyman, joke-ster,--medicine man. where was the family vote? haha. just kidding. good to hear that the trial is on! do you get paid?

The Wife said...

Xray came out looking good no evidence that the cancer is anywhere in there right now.
Very excited today with that news.

He is still having some discomfort and some pain but is being medicated for that. This is all normal because of the extent of the surgery and they did a lot of stuff in there. Full recovery will take a little longer.

He needs to see Dr. Chen tomorrow to see if radiation is an option for the area where the surgery was performed. If he needs to have radiation he will not be able to do the trial.....but Dr. Grannis said he may opt not to do the radiation to that area , will see and I will let you all know what happens.

DLP and Machini are going on vacation on Thursday we are excited they will be spending a little more time with us. Exited for that too.

I would like to thank you all for your contributions.....they are very much appreciated.

Anonymous said...

Surviving 3 under 5 said:
It is pretty interesting how this medicine is to work. Am I getting it right???
This medicine inhibits growth of cancer producing cells??

I am amazed at how much information is known about the characteristics of Cancer cells.
I am optimistic that research like this is going to break the cancer code for good.

The Sarcoma Cancer trial is the most advanced trial for this medication. It is in the third phase. Other Cancers are also in the first, and second phase of the trial process for this medication.

The decicion to join this trial is a courageous one. You continue the path of a WARRIOR, facing it all. Moving foward, recovering, surviving, planning your next move in the war against Sarcoma.

I wonder how close it is for final approval?

Anonymous said...

Leezy120 said:
It's great news to hear that the chest xrays look good. Hang in there buddy! We will take it a day at a time. Thank you for all that you do!
I truly appreciate you, The Wife, DLP, and Machini. You definitely made my birthday special! I love you guys so much!!

Anonymous said...

The tough stuff is getting tanned! I was going over pictures from the not so distant past. It is amazing how much chemo screws up everything in the human body. But Marcito is going back to his multi-colored self during the spring/summer time. It is funny to see him with all of his hair coming back. Instead of a glow, he has a shadow. hehe.

Elsa D. said...

Good luck Marco. Hope you continue to recuperate well from the surgery.
"The Wife", thank you for bringing me here to your family blog. It always feels good to know that we are not alone in this fight against Soft-Tissue Sarcoma.

Anonymous said...

Hey Marco, this is Mario, Sal's little brother. I'm very glad to know everything went well for you. I just want to say that I keep wishing you the best and will keep you in my prayers. I have faith that you will make a full recovery. You are a fighter and an inspiration to all those other people battling Sarcoma. Continue to be positive and strong, you are doing great! I wish you and your family the very best.
god bless,
Mario Sanchez

Surviving 3 Under 5 said...

Well Well Well
finally figured out how to post as a blogger! check me out!