Saturday, February 27, 2010

Overwhelmed

Sleeping on it....is not always the best thing, I think. I woke today, telling Marco that yesterday I was waiting to hear, 'I will do the surgery', because to me it meant that the tumors were small enough to be taken out and they were in a spot were they could be reached. I had been waiting to hear these words since we had left his office and he said that surgery wasn't an option at that time.

Since Marco started the chemotherapy the tumors reacted nicely reducing 90%. The two small tumors are unmeasurable and the biggest one is smaller then before.
I was happy to hear that surgery was able to be done. The RN started to explain everything that Marco would have to go through again. I think I was in the zone to pay attention to everything that was coming out of her mouth that I didn't have time to process what she was actually saying. But, this morning, I have a different feeling. I marinated everything and I woke up worried beyond belief. Maybe just because of the big surgery, but especially knowing what Marco has to go through once more.

Just as much as the last surgery was big this one is huge. He will be in under the care of two doctors Dr. Trisal and Dr. Grannis, they have asked Dr. Trisal to join if he needs to step in if the tumor is underneath the diaphragm.

The surgical area will be on the same scar he has now, but it will be cut further towards the front of his torso. After the surgery, Marco will be in intensive care for about two days, he will have two tubes coming out of his chest to take out any liquid in the area once the tubes are removed he will then be transferred to a regular room. He will be in the hospital for about a week.

It's just a little more overwhelming this morning than it was yesterday. Of course, City of Hope looks out for best interest of their patients, so I am positive that in the Sarcoma Board meeting, on Thursday, they looked at everything involved.
I guess it all comes down to....it needs to get done.

They can't just sit and watch, see what happens or let's give it time. Marco doesn't have that pleasure these tumors need to be taken out quickly because the chemotherapy may only shrinks them in size, but does not kill the sarcoma cancer cells. Which means these tumors could grow again and we don't want that.

Different sarcomas work differently and in Marco's case where ever the tumors pop up, the chemo is to shrink them as much as possible and surgery is the way to take them out. It is what it is and there is no changing the out come of surgery being the way to go to remove these tumors....its just the feeling of helplessness that I or anyone else for that matter can not do to take this away.

When I write in big letter I HATE CANCER!!! You can't imagine the anger, where this is coming from. For something like this sarcoma to come in and interrupt life is unfair. I am starting to hate the word unfair, I need to find some other word that I can yell out too. I just can't think of one right now. It is just very frustrating to think that Marco has to go through this again and it makes me mad and nervous I guess.

Friday, February 26, 2010

Verdict

According to section code: Surgery or Not......it's a go.


The verdict is in, they will be doing the surgery sometime within the next week. They will be asking Dr. Trisal (the surgeon who did Marco's first surgery on his calf) to join Dr. Grannis in the surgery.

As soon as we get more information about the surgery we will let you know.

Thank you again for all your well wishes.

Tuesday, February 23, 2010

Long Day At COH

Long day at COH today. We left the house early this morning at about 6:30am and got home about 8pm.

What we thought would be a follow-up appointment turned out to be a you need 2 bags of blood.
Red blood count was at a 7.9 from a 13. After 6 hours to infuse the blood we are back home.

Good news is that the CT Scan taken on the 18th shows that the two smaller tumors are none measurable and the large one has shrunk from a 3.1x2cm to about 2.4x1.7cm.

Sorry to just let you know, but his last appointment last Friday was rescheduled to this Friday to see Dr. Granis to let us know what the Sarcoma Board say about the surgery. So we will let you know what happens with this appointment.

As for now , Marco is doing well just very tired from a long day.

Tah Tah for now

Friday, February 19, 2010

Will He or Won't He

A couple of weeks before this appointment the body just seems to get on a roller coaster but the one that just goes around and around and you get queasy all of a sudden. But it's all leading to today. Today is the day that we will find out if Dr. Granis will or won't have a change of option to do the surgery.

Last we spoke to Dr. Granis he said that surgery won't be an option. But after 4 cycles of a different chemo and not to mention all the complication that Marco had after the 2nd cycle and with the tumors shrinking 90% on the last CT Scan. We are crossing our fingers that the scans he took yesterday late afternoon look good and there is good news coming out of this appointment.

We will let you know later on today what the final word was.

Meeting Mr. Jamie McMurray

( In the picture #1 car Bass Pro Shop driver Jamie McMurray 2010 Daytona 500 Winner!)
and all of us of course.

For all those that don't know we are all NASCAR FANS! Last weeks race was awesome! We spent the day at Momma M house and I cooked with Momma M and we baked all while in between commercials to see all the boys racing at Daytona. The race was nail bitting and not to mention that we were all at the edge of our seats. After a long delay that by the way didn't bother us Jamie McMurray came speeding in as the 2010 Daytona 500 winner! Amazing racing!

We went to the Bass Pro Shop in Rancho Cucamonga to go meet,greet, get an autograph and congratulate Jamie McMurray for a hell of race in Daytona. It was a great late afternoon to have met the 2010 Daytona 500 winner! After we went looking around the store and who did we find shopping and looking around but Jamie himself Marco said we were stocking but he miss understood when we said let's go shopping. I even got to see him again up close and personal in between the aisle and tell him good luck this weekend as I gave him a nice shoulder grip ( like a pal would do) I was laughing and Marco was yelling in the store "STOCKER"( lol) it was funny. We all had a great time...Lazy T even enjoyed the fun. He drove from L.A in traffic to meet up with us.

Sunday, February 14, 2010

Showing Some Love

video

Happy Valentines Day!

Today is the day you show some love to the one person who matters most in your life. Marco has been my valentine for 30 years. We were childhood sweethearts, high school sweethearts and every other sweetheart there is.

We have know each other since we were nine or ten years old. You can almost say it was love at first sight. As cheezy as that may sound it's true. Our love for each other is still as powerful as it has always been and I am very proud in that. There is nothing I wouldn't do for him...well except maybe bungee jump, eat cottage cheese, but other than that, I don't think I would hesitate.

Handsome wishing you a great valentine's day! Can't wait to spend the day together watching DAYTONA 500 and enjoying some great food and company as we sit down and watch the first NASCAR race of the year! We are all so excited.

We are all wishing you feel better soon. Marco is feeling better as each day goes by. Just can't over do himself because the tiredness crawls up on him. The nausea went away. But other than that he is doing well. We have the appointment next week, which brings a tight knot in my stomach as well as restlessness. But we are taking it one day at a time and trying not to get our chonies in a knot over it. We will keep you posted on what happens. Thank you everyone for showing your love in the video.

Again, thank you to all whom have called and sent well wishes to Marco, the kids and myself. We really do appreciate it.

WE LOVE YOU ALL! HAPPY VALENTINE"S DAY!!

Monday, February 8, 2010

Drained

I think this images paints the picture for you of how Marco is doing. He has been very tired and drained. These last two chemo rounds have really kicked his butt. Just to see him so tired boils my blood because he shouldn't or anyone else be going through all of this BS that comes with having cancer.
These next two weeks come with a lot of anxiety especially of the "unknown", of what is going to happen when his appointment comes up to see the surgeon. Will he say yes I can do the surgery or will he still say that surgery is still not an option. Ugh! if I feel the tension, Marco feels it 10X as much I am sure.

I know that he is drained because usually his will stay up to greet family when they come to see him and chat for awhile and then he may wait till the visit is over and go take a nap or just rest in his comfy chair.......but this time he will come out to say hi and go back in to the bedroom and rest. He may say he is feeling good but his whole face and body language says different. So for now, lots of rest to try to help the body recover from all the poison that went into his blood stream. I hope you feel better soon honey, we all you very much and wish with all of our hearts that you wouldn't have to go through all this. Chin up! With each passing day it will get better.

On another note:

As some of you know, we are NASCAR fanatics. We were invited by several loved one to attend the Daytona 500 in Daytona, Fl, but we had to decline the offer because Marco has had some complications after his last chemo cycles and we didn't want to risk having problems happen out there. But we would like to thank all of you who tried so hard to get us out there it is truly appreciated. So for now, we will enjoy watching the Daytona 500 on TV.

We would like to take time and thank everyone who has called and asked about Marco, the kids and myself. We are trying and hold up as well as we can. We really appreciate you thinking of us.

We hope that each and everyone of you is doing well.......thank you again from all of us :)

Saturday, February 6, 2010


Glad to be home after being at City of Hope for a week. It just seemed that time was just running slow. Especially the last couple of minutes before the last of the mesna was dripping. This is were Marco starts to feel the anxiety to leave with one foot out the door.

We are so happy that Marco is done with the chemo....I am really hoping that this is it. I hate seeing him go through all this.

We were wanting to be home with enough time to see DLP before she left to her winter formal and we did. I was very excited that she hadn't left when we arrived. She looked so beautiful and so grown-up it brought tears to my eyes to see my little girl all dressed up.

But that is life and all I did was take pictures and smile as she ran away in the rain to go to the dance. Hope she enjoys herself.

Now to get as much rest tonight before returning to City of Hope tomorrow for his neulasta shot to boost his immune system. We will be back in time to see the Saints beat the Colts. GO Saints!

Marco is very tired in this last cycle ....really hoping it doesn't last to long. I am very glad we are home and that the chemo is over.

Thursday, February 4, 2010

Want To Go Home

Starting to feel the anxiety of being here to long .....Marco has been ready to go home. The days seem to go by so slow and the days just drag on. But we are planning on being home on Saturday by late afternoon. I am so excited because DLP has her first Winter Formal to go to. I was feeling sad that we would not be there to see her get ready. But the nurses says they would do their best to get him out on time so we are crossing our fingers for that.

This cycle was cut short by one chemo, they took out one chemo which Dr. Chow thought might had been a culprit to the complications that Marco was having with his platelets being extremely low. So this time he only one got one bag of that chemo on the first day and that was it. So far he has been tolerating it very well.....but he is starting to feel the nausea in the morning now. Tolerating it as well as he can. We both miss the kids that we haven't seen all week and that's because the chemo started early afternoon and if they were to come after school Marco would not be allowed to walk downstairs during chemo. I think that's what leads us to the anxiety as well as not wanting to get all the chemical into his body.

We have had several of the nurses that we know and are all very happy to see us but this morning we were surprised with Julie who was so excited to see us more. She said that she was excited to know that she was going to be our nurse. It was funny she came in and gave us a big hug. She is so sweet.

Marco has his rep to keep.......... as the good patient .....all the nurses love him ..he just laughs to hear that. Well ,hell what else can we do....I wonder what they would all say if he would rebel .lol

After going home for two weeks we will be meeting with the surgeon again to see if he will be doing the surgery or what the next step will be so crossing our fingers for a second time that they will opt to do surgery.

Till the next update........